Thanks to all responsible for creating this site, it rocks! I will be doing daily reports on this site from here on out. Will do my best to be on here daily so please stop by for the latest report. Thanks to all John.

     Gift of Life Transplant House

     Carol Brott Room 137  

     724 2nd St. SW

     Rochester MN 55902

 

John's Phone: 515-293-0728        

John's Email: usthreejb@yahoo.com

 

Nov 5 2009 6:30 pm

Carol had a good night last night and continues to hold her own. The doctors are working on removing fluid, hopefully closing tomorrow, but maybe not until Saturday. We are taking it one hour at a time. Keep smiling for Carol

 

Nov 6 2009 5:35 pm

Carol remained steady last night and this morning, pulling lots of fluids. She was taken down to the OR at 12:00 today to close her chest and brought back to her room at 3:30. All went well, however she is very unstable at this time and medications are being adjusted to regain that status. Will be a busy night for Carol and staff. Next couple days will be spent removing more fluid  and keeping her stable. Im looking forward to seeing Brady tonight as he's coming to Rochester for the weekend. Have a great weekend as Carol, Brady and I plan to do the same.

 

Nov 7 2009 10:06 am

Carol reacted well to the drugs and now remains stable. She is currently awake some and able to answer most questions asked, nice to see her awake. Today, as many days to follow, will be spent keeping things as they are and slowly changing the medications to progress her towards recovery and future transplant. Carol is on the transplant list, but at this time is listed as not active do to many conditions, kidney function, liver function, and lungs. She will move up the list once these things improve, and doctors seem to think they will. So keep praying and Carol will do the rest.

 

Nov 8 2009 8:00 pm

Carols been doing good all things considered, weekends here seem to be real slow and steady. I expect some more changes with medictions  tomm. to start moving forward, but for now steady is good. Pulling so much fluid, right at two and a half liters each of the last days. She looks much better as far as that goes. She is very alert and spends much of her time trying to tell me things I just cant make sense of, sorry honey.

 

Nov 9 2009 8:50 pm

Not much to report today, fluid pulling has slowed as they have removed almost thrity pounds this far. However, they did remove all four chest tubes and less tubes means progress. Sounds like they will start to step down the need for the vent for possible removal on wednesday. I attended a organ transplant group disscusion, where many waiting and a couple that recieved join in with there experiences. Will go every Monday from here on out.

 

Nov 10 2009 10:46 am

Carols numbers are holding strong and plans to wean the vent have been put on hold, instead they have decided to remove the vent and replace it with a trach, do to the length of time she's had the vent. Carol is very weak as her muscles have not been used for four weeks today, this include her breathing, so we are not quite ready for no help breathing.  I have been taught how to help exercise her feet, ankles, knees, hips and arms so they will not loose function. I spend a hour in the morning and evening doing this, Carol hates all of this, but it needs to be done.

 

Nov 11 2009 9:15 pm

Today was filled with highs and lows. This morning at 11:30 they removed the vent and installed the trach, and Carol seems much more confortable. She is glad the vent is gone, but not happy the trach is there, and of course this is all my doing. She is able to converse by the reading of her lips and even smiles once in a while. She just chooses not to do any of this with me, she is very pissed at me, but hopefully tomm is a new day. They are watching a fever close and waiting a stool to make sure all is ok in her stomach. Sorry again Carol, but you will understand later.( I hope)

 

Nov 12 2009 8:15 pm

Carol and I are doing better, the nurses and doctors have explained to her what has happened in the last month without going in detail. She understands that I did what I had to,  and forgives me a little more everytime I rub her feet, legs, arms, and whatever else she wants rubbed.  This is good by me, whatever it takes to get her home. She is doing fine today starting to wean some meds and vent., still working on other small things as well. The staff here is amazing, couldn't be happier, thanks to all of them!! (got a 2 bedroom apt today life is good)

 

Nov 13 2009 10:45 pm

I went home today to do a few needed things and to get Brady for his mom. So I was gone most of the day, but here is what I have been told. Carol had a good day, she had all new lines put in, worked on weaning the vent that went great, met with therapy and worked on  more motion of arm and legs and they were impressed with what she was able to do. She was thrilled to see Brady for the first time in four weeks if only everyone could see her smile, what a wonderful moment. Yes, Brady has been here every weekend but she remembers nothing from Oct 13 until now.  Carol has forgiven me now! :)  Should be a great weekend!

 

Nov 14 2009 8:45 pm

Busy day today, changed more lines, had some problems getting the bleeding to stop and had to get a unit of blood. Doing fine now, but limited the amount of time Brady and I were in to see her. She finally had a couple stools today and we have never been more proud of a stool. I changed her dressing around her drive line, for the LVAD, for the first time and will need to do this everyday until transplant. Turned vent off today for about six hours , Carol did great, and turned back on to give the heart a break. Will do this for many more days. She is now getting ice chips and even a drink of sprite once in awhile.

 

Nov 15 2009 8:00 pm

Little slower day, as Sunday should be, still weaning meds slowly and working on vent also.  Coughs well and often which is needed to keep lungs clean. Other then this I think today was a day of rest, for a busy week ahead. She has came so far and doing awsome, but we have a long ways to go. Once again, thanks so much for all your support!!

 

Nov 16 2009 11:00 pm

Put new line in today for dialysis. Dialysis will be used for support while they try to get the kidneys to function once again. Theropy was in once again today and had Carol sitting up on the edge of the bed. It took alot out of her, I think she will sleep good tonight. Had a couple friends stop by today which is always nice and they even donated blood here at the blood center, one of them for the first time ever. ( Thanks Eric )

 

Nov. 17th, 2009

We are having some problems with the site, please be patient as we try to get the "kinks" worked out. John has not forgotten to put any updates, just isn't able to right now.Thanks for your patience and understanding! 

 

Nov 20 2009 6:15 pm

Carol had a couple of minor set backs the last couple of days, but things are once again moving slowly forward. Carols kidneys have shown a slight effort of regaining ground and the liver the same. She continues to get dialysis once a day for three to four hours, and is always having problems with the dialysis machine clotting off. She lost a couple more IV's and is receiving only 5 from the once 14. She sat in a chair this morning for about a hour and again tonight for about two. Her spirits have been up and down, but I'm doing my best to keep her on track. They capped her trach today as well and let her breathe completely on her own for about thrity min., to say the least I think she will sleep well tonight. Carol is so greatful that I'm here and thanks me several times a day and I'm greatful to have friends and family who make it as easy as it can be. THANKS

Nov 21 2009 10:30 pm

Well not alot to report today as it is the weekend, and as always things seem to be a little slower on these days, which is kinda nice. Carol did more of the same things today as the last couple. Her stomach seems to be working better, and she says she feels a little better, as this has been one of her biggest aches. She just got her legs shaved tonight for the first time in six weeks, follow by a bath and lotion. Shes lookin' pretty damn good! :) Nurses here are sooo good and thoughtful, we like them all very much! Thanks to them the hospital is not such a bad place.

Nov 22 2009 5:00 pm

Much of today was spent sleeping, after being in the chair early this morning for one and a half hours. I went to church this morning, with a couple that is here with there new born daughter Lydia, who arrived three days before Carol. This afternoon Carol received dialysis again and continued to rest. They have detected a new bacteria in Carols blood and are growing it now to determine how to treat it. This bacteria and a spiked temp. today may be why Carol is so tired today. I will know more tomm.

Nov 23 2009 11:00 pm

Well its monday and things here were busy, starting with a scan of her neck, chest, and belly to try to deterime where infections may be coming from, but little was found. Started her on a med today to kill the bacteria, did dialysis, adjusted other meds, and now is all cleaned up ready for bed. Today marks many things, it was six weeks ago today this whole event started for us, and four weeks ago today we arrived here at Mayo. It was also one month ago today that my new friends Russ and Julie had there baby girl Lydia, and sadly this day also marks the day their baby Lydia passed away. Never thought two complete strangers only four weeks ago, would become such a big part of my life today. I'm so sadden by their loss and wish them nothing but the best in the future. Love you guys!!!

Nov 24 2009 10:45 pm

Many more tests ran today, scope of her throat and lungs. They found fluid around one lung and removed it, about one-half liter. Carol has put on alot more fluid in the last few days and the 3-4 hour dialysis dosen't seem to doing the trick, so today they restarted the continous dialysis. They hope to remove around 2-3 liters each day until back in check, she once again is about 45-50 pounds over loaded. This is very hard on breathing and a big strain on the heart. She also recieved two more units of blood yesterday. Things in the waiting room are so different today, just can't believe how quickly things can change.

Nov 25 2009 5:30 pm

Things here seem to have slowed a little today, they removed all of Carol's lines and replace them with new, to try to get rid of possible cause of bacteria. Dialysis continues, and some much needed rest is happening now. Brady is here today, and I know I haven't seen a bigger smile on Carol's face then the one she delivered today. Carol later asked Brady "Are you scared that I'm not going to get better?, he replied "yes", and then she told him "Don't worry, I'm going to get better for you and dad." It felt so good to hear her say it, instead of me telling her that. Thanksgiving for Carol, Brady, Syliva, and I will be spent here in Rochester and we couldn't be more thankful for anything then that!!

Nov 26 2009 10:30 am

Every year growing up at Thanksgiving my mom would ask me what I was thankful for, and now I find myslef asking Brady the same thing. However, his answers seem to be alot more intense then the ones I would struggle to find when I was eleven. If mom were to ask me today she would be very impressed with my list, as I have to many to mention them all. But, to name a few, my family, friends, doctors, nurses, medicine, Mayo, the entire town of Clarion, those who follow this website, and the people who donate the GIFT OF LIFE. Happy Thanksgiving to you all!!

Nov 26 2009 9:00 pm

We had a great Thanksgiving!! Carol got news the bacteria seems to be under control and the meds are working fine. Other then that she had quiet day, and a green bombpop for dinner. I spent a good share of my day with her while Brady and Sylvia stay back at the apartment this afternoon. Off to a movie with Brado now.

Nov 27 2009 10:30 pm

All is going good here, they removed right at three liters of fluid again today and plan around the same tomm. The bacteria is pretty much gone and other meds are being reduced a little. Theropy will hopfully resume on monday, as she is only able to do leg and arm motions for now. Carol and Brady had a good talk today which resulted in a much needed breakdown for both, so hard to watch, so I left and they spent about a hour and a half doing their thing. So much for an eleven year old and a loving mother to have to talk about, my heart aches.

Nov 28 2009 9:45 pm

Removing more fluid, found another bacteria in her throat, growing it now but not as worried about this one as the last. She sat on the edge of the bed this morning for about forty min. She is now able to eat several different soft foods after doing well on her swallow test on friday. Brady and I went to the store and got her several different things to eat and drink. Sleep is something that continues to be hard for her, getting only two to three hours a night. Brady went home around three o'clock today, him needed a day to be a kid, mom and dad are so proud of him!! :0)

Nov 29 2009 9:45 pm

Removed two more liters today, also found out what the bacteria is in her throat and now treating it. Eating a little more and seems be be pushing it threw as well. Sat up twice today and worked on motions from the sitting position, doing good. Guessing monday will be a little more busy then the last few days. Carol recieved some photos of sock and hat day at the elementry and middle school, and was very taken by the idea that this was done for her. She shed tears of joy, along with the nurse and myself. This all means a ton to Carol, thanks a bunch!! 

Nov 30 2009 10:00 pm

After only getting 2 hours of sleep last night Carol isn't up to doing a whole lot today. Everything seemed to be a struggle from breathing to sitting up, eating to napping, just not a real good day. She will be getting a little extra sleeping aid tonight, that should help. Numbers still look ok, just tired. I went to the transplant support group today, and continue to learn more each time I go. This evening I got a nice surprise when Lydia's parents Russ and Julie stopped by the hospital to visit and take me to supper. So nice to see them and hope to see them again soon!

Dec 1 2009 6:45 pm

Another rough night sleeping last night, only slept one hour, more help on the way tonight. Also addressed a shaking issue, as she shakes most of the time, not real sure way but think lack of sleep, weakness and stress are most likely to blame. Carol was able to get to her feet and stand a short while again today. Looking forward the plan is to start eating more calories to reduce fluid feeding input (iv feeding),by reducing fluid input, dialysis can be shortened to four hours a day.  Shortening dialysis will then allow her to be more mobile and get to her feet to start rebiulding mussle, and then they can start weaning the vent. With rest this can be started.

Dec 2 2009 8:30 pm

It would be safe to say Carol is feeling a little better. Last night as Carols nurse(Don) and I were looking at the menu for her meals today, she decided to push the test button on her LVAD controller which set off alarms. Don rushed to the power base and I to the controller only to find her finger pushing on the button and Carol with a big smile on her face. It was funny about a hour later after Don and I dried out our pants. You got us Carol!! She had a good day today, another swallow test and can now eat a little more, the fluid feed was removed and vent was turned down. She has her moments with all that is going on, and is missing Brady something awful. Dr Park stopped by tonight and thought Carol might be able to get out of the ICU in a couple weeks.

Dec 3 2009 10:00 pm

Carol had another eventful day. Still pulling fluid two liters today, hope to change to other dialysis by monday. Theropy is becoming a little more intense and Carol is doing her best. Only one hour of sleep last night and this my be holding her back, more sleep needed soon. Vent was removed for about fifty min. and was turned back on as she was tiring out. Carol sat on the edge of the bed twice today and i was able to receive my first hug from her since Oct. 13, it was long overdo. I will be going to Clarion in the morning, to do a few things and to bring Brady back up to Carol.

Dec 4 2009 11:00 pm

I was in Clarion this morning around 10:30 and managed to get about half of what needed done, but had a couple good conversations, that was nice. Very nice to see and hear the concern of all back home. Brady and I got back in Rochester around 9:00 and came right up to see Carol, sounds like she had another good day with steps moving forward. She sat up three times today and stood twice, once for about twenty seconds, did theropy twice. She was off the vent twice as well, both times for two hours. She also slept for a whole four hours last night. After all of this she needed a little blood and received two units. And to end the night see got to see Brady and a video of what Bradys has been doing the last month, she was touched once again. Thanks Amanda!!

Dec 5 2009 11:00 pm

Another good day today!! Carol slept about six hours last night and looked refreshed this morning. She was off the vent two hours this morning and did theropy as well. Brady, Carol and I just sat and talked this morning about everyday things and watched a movie. Brady and I then went to La Crosse to see Russ and Julie (Lydia"s parents) hung with them, had supper and looked at Christmas lights, was very enjoyable seeing them. Carol had all kinds of news for us when we returned, they have removed the continous dialysis and are testing her kidneys, she got in a wheel chair and went for a ride and not a short one. She was out cruising the halls and waiting rooms on the fifth floor for two hours, she even went down to the lobby on the main floor to see the Christmas tree. The nurses here took pictures to show us when we returned. Carol had a great day!!

Dec 6 2009 11:45 pm

Little slower day as Carol is shot from her big day yesterday. Seven hours of sleep last night and a two hour nap this morning and still tired. We did get her back out to the halls this afternoon for two more hours. She was off the vent for a total of five hours today and could have more if not so tired. She is down to only three IV's. Kidney function is slow, so dialysis for three hours may restart monday. We had a good weekend.

Dec 7 2009 11:00 pm

Today Carol and I remember the loss of a very special person. Although you are not here, we know that you are our biggest fan, cheering Carol on all the way to a new heart and promising me everything is going to be alright. Can't believe it's been two years, we miss and love you mom, wish you were here.

Carol had another good day, she is know down to two IV's, had dialysis for three hours today and removed three liters of fluid. She went off the vent today at 8:00 am and is still off it now and is sleeping for the night. They put in a smaller trach today and capped it so she could talk, so we called Bradys cell phone and she left a message for him. She also walked about twenty feet with a walker, but needed help back to bed. She is working hard to get better and will sleep good tonight.

Dec 8 2009 10:00 pm

Eight weeks of hospital today, six of them here at Mayo, time has passed faster for me the last couple of weeks. Carol on the other hand thinks its moving way to slow. She seems to be on a mission and worked hard again today walking twice, about sixty feet the first time and twice that the second. Off the vent still, only on it about four hours last night. She called Brady today and talked to him, she really liked that. This afternoon we took her on a little cruise to the other end of the building to see the Chapel and stopped by the smoothie shop on the way back. "Finally something that tastes good !"

Dec 9 2009 10:30 pm

Lots of snow here but not as much wind as back home. Carol was really sore and tired today and lucky for her theropy wasn't able to make it in, but we worked a little.  Removed staples from her chest today, moved down to the smallest trach, and remains off the vent. Removed heprin IV, now only one remains, taking other meds by mouth. Still no dialysis as kidneys are moving fluid nicely, test of urine today will tell us thrusday if they are removing toxins. Key now is to work on eating more protien and calories to build strenght and theropy will become easier.

Dec 10 2009 10:00 pm

The hard work seems to be paying off, as they plan to move Carol to the step down unit tomm.,thats right goodbye ICU. Although this is great news we will greatly miss the staff in the ICU, they have been wonderful. Carol worked hard again today, as she repeated the events of the last few days and took them just a little further. Still unsure of the kidneys, but no dailysis was needed yet. If the kidneys dont recover soon she will be listed as a heart/kidney transplant, receiving both organs at the same time. Lets keep praying they recover.

Dec 13 2009 11:00 pm

Wow, what happened in Clarion today is something Carol and I will be greatful for the rest of our lives. It was simply amazing. I returned to Rochester at 9:30, after being in Clarion for the weekend, and spent the next hours trying to tell Carol all that was happening at the benifit. Storys kept running into to more storys which kept creating tears after tears, we are truly blessed to have made Clarion our home. Thanks so much to our wonderful friends, family, donors, and all who attended, you are what keeps us going, God bless you all!!

Dec 14 2009 11:30 pm

Happy Birthday to the most amazing woman I've ever met!! Thanks to all for making Carols b-day one to remember. Carol received fifty-eight birthday cards today by mail, twenty-one cards delievered from benifit and well over one hundered cards in all. Carol had a good weekend as her mom and friend Maragret spent it with her so I could be in Clarion. Carol continues to work hard with therapy and truely understands the meaning of "no pain no gain". Getting strenght back is going to take so time. No real big changes in anything else, she did receive dialysis over the weekend. Will talk to the doctors on tuesday and hopefully will know more.

Dec 15 2009 10:30 pm

Talked to the kidney doctors today and numbers look a little better, but still unsure on their recovery. Heart transplant doctors also stopped by today and said all is going well and that Carol just needs to get stronger to be placed on the active transplant list. Carol also had another swallow test and is now able to drink thin liquids. She had a couple visitors this morning and seems to be getting back to her old-self, making them all laugh. Thanks for stopping.

Dec 16 2009 10:15 pm

Scary start to the day, when I arrrived this morning I could tell by the look on Carols face something was wrong. On the controller there are two power leads that hook up to a power source, the power is needed to run the LVAD. The power source at night is the base unit, and batteries during the day. When changing power sources you must change one lead at a time, to keep the LVAD pumping. Well, as Carol and the nurse were changing over to batteries somehow both power leads became unhooked at the same time causing the LVAD to stop and Carol to pass out. In return "Code Blue" was sounded and a dozen people responded, power was restored, and after about fifteen minutes Carol was fine. (shook-up but fine) She said it felt as if she was holding on to a electric fence and couldn't let go. Yikes!! She now knows how important and how much her life depends upon the LVAD.Other then that she had another good day working hard to get out of here.

Dec 17 2009 6:30 pm

After a sleepless night, do to coughing and vomiting, Carol was run through the tests today. First she was taken for x-rays of her chest and stomach, then blood tests were taken and her pancreas numbers were high. Next an echo of her heart, followed by an ultrasound, and a ct-scan of her stomach. Test results will be known thursday, they seem to think things will be ok. On a good note, her kidney function has gotten a little better again today,and they decided to remove the dialysis port, as no futher dialysis is thought to be needed. They also removed her trach today, since she has not needed any help breathing. So even on a day filled with tests and very little therapy, she still made some big strides. One of Carol's nurses from the ICU stopped by yesterday to say hi and he stated the following " I was talking to the nurses today we all agreed that Carol is our ICU miracle patient of 2009!".

Dec 18 2009 9:45

All test results are fine and Carol is back in the swing of things today. They have started to wean the last remaining IV, this drip helps support the right side of the heart. Walked three times today along with several other exercises. Carol and I went on first unsupervised trip to the waiting room this afternoon. She is now able to eat anything she would like, however is still on a fluid restriction.

Dec 19 2009 10:00 pm

Sleep has become a problem once again, Carol has slept very little the last few nights, which makes for longer days. Hopefully that turns around tonight. She had a couple more visitors again today and as always was delighted to see them. Brady did not make it up this weekend, do to a middle school dance on saturday and a short week next week. Will be nice to have him here over Christmas break. The big news of the day was that Carol got to take a shower for the fist time over two months, with some help from the nurse and I. This was quite an undertaking, it took nearly two hours from start to finish and all of us getting soaked in the process. Carol enjoyed the shower like never before.

Dec 21 2009 9:30 pm

All is well here in Rochester, Carol continues to do her therapy and take her walks, with each trip getting a little easier. There is nothing simple for her at this point, she keeps on moving forward, but not always without being pushed. Her days are real busy until about four or five o'clock then finally a little Carol time. They are weaning the final IV and should be off it by this time tuesday. There is talk of Carol moving off this floor to the rehab floor sometime in the next week and will be there for a week or two. We will then come home and wait for a heart.

Dec 23 2009 10:30 pm

Sorry for not posting the 22 nd, I went to Clarion and got Brady and Sylvia. Got back to Rochester at 6:00 and spent the next five hours with Carol and forgot to post on my way out. Things remain the same, moving forward. She is now free of all IV's but many meds are taken oral, they removed the pick line today as well. Brady and I did our Christmas shopping this afternoon, what a rat race, is it always like this? For sure Carol's job next year!! So I'm glad to say not much else to report from the last two days, just working on getting home.

Dec 24 2009 8:15 pm

More of the same here at Mayo, as we hardly even realize that Christmas is hours away. But what a Christmas to remember, just wish the weather was better so our familys could be here to enjoy it with us. Brady, Syliva, and I will be having company at the apartment for Christmas, as Carol will be making her first trip outside in two and a half months. Thats right I will be getting Carol at around 11:00 and taking her to the apartment to open gifts and eat dinner. We are so excited. Brady and I ran out at two o'clock(when we heard she could come over) and bought a tree and all the fixings. We must now go and get it set up, so everything is perfect. Christmas wishes are still coming true for me at 37, and I hope your wishes come true as well!! MERRY CHRISTMAS!!!!!!!

Dec 25 2009 10:00 pm

Hope you all had a wonderful Christmas!! Everything went so smooth today, picked Carol up at 11:00, took her to the apartment, opened a few gifts, ate dinner, took a quick nap, opened more gifts and returned her back to the hospital at 4:30. The day flew by and memories were created here in Rochester. It was so nice to see Carol outside the hospital, she looked great! I often thought what I've witnessed in the last few months is a crazy dream, and today I realize its not a dream, but a true miracle. So proud of you Carol, if anyone ever deserved a miracle it was you.

Dec 26 2009 10:00 pm

A little slower paced day, as it was for most I'm sure. Carol had a shower this morning, this time just with the help of me. Otherwise just the normal happenings. Her brother, Dwayne and his wife, Ginny arrived here in Rochester this afternoon and will be here a few days. Since the outing went well yesterday, another is planned for tomorrow, I think to the mall or maybe a movie. We have also been told that she will move to the rehab floor on Monday. Carol is a little nervous about this but its time and soon we will be home.

Dec 27 2009 11:00 pm

The mall trip went very well. Got to the mall at 12:30, got a bite to eat and shopped until 4:30. Of course a wheel chair was needed for this trip, but fun all the same. When we returned she was given two units of blood, do to her low red blood cell count and with rehab tomorrow she we need to be feeling better. The low blood cell count is do to low iron and should become normal with time and better eating. We have now been here at Mayo for two months as of yesterday and in a hospital eleven weeks as of tomorrow. It will sure feel good to get home.

Dec 29 2009 10:30 pm

Carol was moved to the rehab floor on monday as planned, she arrived there at two o'clock. We took a tour of the floor, met the staff, and spent the rest of the day relaxing with her family. Today was a different story as therapy was here at 7:30 ready to get started. Carol did really well and the staff was impressed with her abilities. After three hours of therapy Carol enjoyed a massage,a short nap and then a smoothie. More of the same expected tomorrow. By hearing everyone talk I really don't think we will be here long, a week or so. I'm asking everyone to please send any mail from this point on to our house, the address is at the top of the page. Continue to pray as we are still waiting for a heart!!

Dec 30 2009 10:00 pm

Another good day here, Carol is busy most of the day until about three o'clock and then its nap time. Carol's mom, brother, and sister-in-law have all went home now, only Carol, Brady, and I tonite as we watch a movie in Carol's room. Some good friends (one of the families watching Brady) are coming up to Rochester tomorrow to bring in the New Year with us, I think another outing is in store. Brady and I are going to the medical supply store tomorrow to get needed items for home, and plan on giving blood again while downtown. We are counting the days for our return to Clarion.

Jan 1 2010 4:30 pm

Therapy, therapy and more therapy is what has been going on here in Rochester. Carol is doing great!! We spent the night with the Carpenter's, we went out for supper and then to the motel so the boys could swim. Carol's night ended early, around 9:30, as she was getting very tired. Brady and I picked up all the supplies needed for us to go home and none to soon as by two o'clock we were told that Carol would be going home on Saturday. I know you might want to read that again, but that is correct we will be home on Saturday. I still can't believe it myself. It seems weird to say, but we're going to miss this place. This place is truly amazing, from the doctors to the nurses and even the cleaning staff, they all do a wonderful job. Thanks for making this experience as pleasant as it could be. And to all of you back home, thank you a hundred times over for your support, and get ready because Carols coming back to town. :0)  See you all soon and hope your New Year is as happy as ours!!!!!!!!   (we will continue to update as we wait for a heart.)

Jan 2 2010 11:00 pm

Feels so go to be home. We arrived in Clarion today at 2:00, and have been going none stop since then. It was a very emotional day for Carol, leaving the hospital, getting to ride in the car, and just being home, things that seem so meaningless, but things she wondered if she would ever do again. We have worked passed that and are now getting settled in, as many things are different from the way they were on Oct. 13th. The doctors have told us that they would like to see Carol become much stronger before activating her on the transplant list and they think this may take two months, so that is the plan , work hard to become stronger. They think once she is healed and activated she will get the heart she needs in the next few months. When she receives the heart we will then need to stay in Rochester for 3-4 months to be treated with anti-rejection drugs and be seen daily to make sure all is well. More time away, but a small price for the gift of life. Our next trip to Mayo is planned for one month from now if all goes well. Carol is in bed sleeping like a baby and I think I will do the same, so goodnight from Clarion! 

Jan 4 2010 10:30 PM  (John)

Everything is going great so far here in Claion, we settled in and made a trip to the hospital here in Claion today to set up further rehab. Carol was greeted by many people, that were surpised but glad to see her home. Always nice to know everyone is still thinking of her. She will be doing rehab Monday, Wednesday and Friday. I continue to be home with her for awhile until we are both ready for something different, just can't leave her yet. I look at her often, shaking my head and smiling wondering how she did it. She is one amazing woman with an amazing will to live. At this point I'm going to be turning this journal over to Carol, as I'm sure she will do a much better job at this then me. When she is making an entry it will be stated behind the date and time and the same for me like above. She will be doing tomorrows entry for sure.

Jan 6, 2010  7:00 pm  (Carol)

Surprise -- It's me Carol.  John has done a superb job of keeping this log for me and everyone that reads it.  He has been an excellent support for me.  I don't know what I would do without him.  I believe he knows more about the medical field than most of the nurses.  I would like to thank you all for showing your love and concern for me through this difficult time.  I appreciate all of you that signed on and wrote things to us.  The benefit that Clarion had for me was just amazing.  I couldn't feel more love.  What a great community that we live in.  I am glad to be home and continue to get better.  It has been a real struggle, but I am giving it my all.  John or I will continue to update the site, however, it may not be on a daily basis.  Thanks to all once again.  ~~~ Carol 

January 16, 2010 1:00 pm (Carol)

Hello everyone!  I just wanted to update you on the last week of what has been going on.  I have started therapy at the hospital 3 times a week for 2 hours and doing some home exercises.  I am trying to rebuild my strength.  Most days I am tired and weak from everything that I have been through.  I still throw up quite a bit and cough until I feel like my lungs are going to come right out!  My legs and feet still are full of fluid, which makes them sore.  So I am hoping that will go away soon.  The LVAD is a lot to deal with on a daily basis.  It is always a worry that I have to be so careful with.  But at least, it is keeping me alive, and I am thankful for that.  I have to be on ogxygen at night now.  So another tube in bed with me.  There is hardly room for the cat!  And by the way, my cat, SOUL, weighs 21 pounds, so I am unable to pick him up.  My limit is 10 pounds with the machine in my stomach.  So he just gets petted a lot.  John is still being a big help.  He takes me to therapy, cooks, and does dishes!!!  With having this device, I am not supposed to vaccuum, touch a computer or TV screen.  I felt horrible about the vaccuuming..... :-)

Have a great day!!

Jan 31 2010 8:30pm (John)

All is going fine here in Clarion, Carol is still working hard to get strong enough to get listed as active on the transplant list. We have had a couple scares in the last two weeks, being woke up in the middle of the night to a sreaming red heart alarm. However, the alarm only goes off for a couple seconds and then turns off. After making a call to Mayo, on Jan 20, we were on our way north to see what the promblem was, turns out it is thought to be just a power surge. We were then at Mayo again on Jan 28 for more test to prepare for the move to the active list. Breathing test, bone test, blood test and kidney function test. We dont know the results of these tests yet but should by the first of the week, and will pass that on to all of you then. There seems to be a little uncertainty on whether or not to place Carol on the active list now or to wait for her to get even stronger. Several doctors have adifferent ideas, and it all seems to be about timing, dont want to wait to long, but dont want to activate too soon, we are sure the doctors will make the move when everyone agrees. The LVAD has now been in place for three months and has really started to just be part of life. We know it is just for a short time and Carol is looking forward to its absense. We continue to learn more about heart transplant each day, and there is so much more to learn, many things will change and sacrifices will be made, but its a small price for a second chance at life.

Feb 14 2010 9:30 pm (John)

More of the same here in Clarion, as Carol continues to get stronger, getting closer everyday to being on the list.  Our next appointment at Mayo is set for March 1 and another on March 26.  We received a letter from Mayo yesterday summarizing the results of the test taken on our trip on Jan. 28 and what the plan for is for the future. As for the tests things are looking pretty good, the letter stated that at this time it is thought that a kidney will NOT be needed and that kidney function is slowly getting better. And the results for the other tests are in and everything looks to be a go. The letter also states that the team of Doctors have talked about Carols case and they feel that she can be listed to status 1B in 2-3 weeks. So it would be my guess that she could be listed at the time of our March 1 appointment. We are ready whenever the Doctors think we are. We also plan on stopping by St. Mary's to see the staff that took such good care of us, hope a few of you are working that day. If you are please let us know so we can be sure to find you. And if we have time I would like to give blood, so Cindy let me know where your at that day. :)   CAROLS GETTING CLOSER TO A BETTER LIFE!! 

FEB 25 2010 7:00 am (John)

Just a quick note to let you know that Carol is doing great! She says she feels better almost everyday, and I must say shes looking really good. As we talk about what might happen on March 1, we get very excited, as it seems to have taken forever, and minutes later we become very scared, as we cant believe its almost go time. It seems so hard to believe it has come to this, the most spunky, fun loving and kind person I have ever met, needing a new heart. Well I can tell you one thing she used her old heart to the fullest, and I can only image what she will be like with a new one!! We are a team and we can do this!!! I will write when we get home from our appointment.

March 2 2010 11:00 pm (John)

Carol's appointment went well and the Doctors are pleased with her progress. After completeing her tests for the day, we spoke to the transplant doctor and he seemed more then sure that Carol is ready to be listed as 1B on the active list. So as of March 1 she has been listed, her hard work and will to live has payed off. Now the wait begins, for how long nobody knows. But, as the doctor said "You can't catch a fish if the line isn't in the water, and it's not always how fast you catch one, but catching the right one." So it could happen anytime, maybe tonight or several weeks from now, we are ready whenever the time arrives. Carol is already getting her things packed for the three month stay after the transplant. We toured the Gift of Life transplant house where she will stay durning those three months. It was hard for her to imagine herself staying there for three months but is more then willing to do what it takes.  We also stopped by St. Mary's and the ICU to see some of the nurses that played such a huge roll in Carol's recovery, I think they too were impressed with Carols progress as they know best how far she has come.  I think it was then, that Carol truely understood how much better she is doing, as the look on thier faces was priceless, thanks for all you have done and your continued support, it means so much to us.

March 21, 2010 10:00 pm (Carol)

Hello everyone.  Thank you again for all of the support that you have shown.  I am very excited that I am on the active heart transplant list.  It is a great thing, but also very scary knowing this is so very real.  I still can't believe that it has come to this....needing a new heart.  I am doing good with the LVAD, but it gets tiresome carrying it around with me everywhere.  But the good news is my pipes are looking awesome.  AND Rebekka, thanks for noticing and commenting!!!  The hard part for me is the waiting for the call, because you never know when it is going to come.  Hopefully I have just showered, done my makeup, my hair looks gorgeous, and my lipstick is on.  John and Brady are my rocks.  They keep me grounded when I get scared or sad.  Brady turned 12 on March 2, and I feel like he has grown up so much through all of this.  They have both been through a lot also.  The good news about the heart transplant is that I can receive a 15 year old - 50 year old heart.  I thought 50...are you nuts!Then they reminded me that I am 45 myself.  Geeez when did that happen.  Even so, I told them that I want a 21 year old heart.  I am still doing therapy three times a week at WMC.  I have increased my time on both the treadmill and the New Step.  Soul, our cat, and Lily, our dog, are very happy and content that we are all home together.  They keep my company throughout the day.  They are low maintenance, just like me.  Again, thanks for all of your love and prayers.

April 3, 2010 10:30 am  (John)

Well the time has come, as we recieved a call last night at 1:20 from Rochester. They have a heart for Carol!!  Brady and I are now sitting in the waiting room awaiting good news. Carol was taken down to the OR at 10:00 and seemed very a piece with what was about to happen, but we all know Carol, shes a trooper.  They feel that they have a great match for Carol and its a go at this time.  I will update this a couple more times today and everyday here on out. The drive up went very fast as Brady slept in the back seat and Carol and I could hardly believe it was happening already, only one month from being listed. We are here, Carol's in good hands and we couldn't be happier for this opportunity. The surgery is expected to take around 8 hours and I will update here as I something new.

April 3, 2010 8:50 pm

Sorry I havent wrote until now but I have nothing to report as Carol is still in the OR. Got word minutes ago that she will be down there for at least two more hours, making an 8 hour surgery closer to 12.  I just hope all is going well down there.  Updates have been few and far between for me as well, so I really dont know what to say.  I will write as soon as she comes up to her room. Everyone has gone back to the hotel for the night, but I will stay until I see her, so I can let you all know what going on.  Keep the prayer coming... Thanks JOHN

April 3, 2010 10:40 pm

Carol has just arrived to her room, I have not seen her yet but wanted to let you all know that the heart is working great.  They had some issues with the scaring from last surgery and she had alot of blood loss and after 4 hours of working with that they feel better about it now.  They may still have to take her back down to flush her out again later but Dr. Joyce thinks all will be ok. Heart is working great and he said she recieved a great heart. Im heading back to see her now and will write again in the morning. So far so good!!!!

April 4, 2010 10:30 am

Just talked to the doctor and everything seems to be going well, heart is working great and bleeding has stopped.  Plan for today is to wean the vent slowly and remove it most likely tomorrow. They would normally remove today but with fluid on the lungs and bleeding, tomorrow may be better. I talked to her this morning and she responed by opening her eyes and nodding her head. She is really bruised and puffy in her neck,face, and chest areas. She looks tough but nothing I havent seen before. Resting again now and will most of the day with the vent. Once vent is out the work begins, up and moving as soon as possible.  So very proud of her, she is truely amazing.. Thanks for checking on her and praying for us, I will write again tonite.     SHE DID IT !!!!!!!!!!!!!!!

April 4, 2010 9:30 pm

Carol is doing good, vent remains in place and plan to remove tomorrow. Swelling seems to be going down a little as she spent much of her day sleeping.  She is very comfortible and feeling no pain. It feels so good to have this much already behind us, although much is still ahead.  It still seems to be somewhat like a dream as it all has happened so fast.  Many of the nurses that we had up here the first time, have stopped by to say hi, it almost feels as if we never left. Feels good to be back up here!!

April 5, 2010 1:30 pm

Things here remian the same, Carol is still on the vent and it is now thought that it could be removed tomorrow. The plan was today, but with the swelling of her neck going down slowly and the bleeding of her right lung and now a bug in her lungs, the vent removal will have to wait.  She looks much better today, her color, the swelling and awareness all have improved. The right lung had attached to the lvad so they needed to be seperated at the time of removal of the lvad and heart.  This is why the lung is bleeding and slowing the recovery. I talked to her this morning and she was very unsure that she reciecved a heart. After about 30 minutes and several tears, I think she finally understood her dream had come true. So, not much else to report today as only time is needed for healing of the lungs and removal of the vent.

April 6, 2010 10:30 am

Good start to the day as Carol was able to have the vent removed this morning. She seems to be doing great and is very alert, nice to hear her voice. She will continue to be in the ICU for a couple more days and then to the step down unit for a week or two.  Then she will be staying at the Gift of Life Transplant House for the rest of her three month stay. The plan for today is to go somewhat slow, as they wean a couple of meds. Tomorrow they will move her IV location for her groin to her arm so she can get up to a chair and soon after to her feet. Things are looking great at this time and Carol is feeling pretty good.  She noticed this morning that her fingues are no longer purple and her hands, feet and entire body is warm, no blankets needed.  The idea of a new heart in place still hasn't completely sank in.  As we celibrate a new heart someonelse still continue to mournes the loss of a loved one, and to them we are deeply sorry for thier loss and we wish them the best in the future.  Thanks so very much for truely the biggest gift that could ever the given, the gift of life.  May someday we meet in person, as you are part of our life forever..  Please keep them in your prayers also.    

April 7, 2010 9:30 pm

All is good here in Rochester. Today Carol recieved a pick line in hopes to remove the line in her groin tomorrow morning, so she can get moving. With all the lines shes had in the past, it was hard to find a good spot and they are not sure the one they found is going to work until tomorrow.  She always got a new room today on the 6 th floor which is where heart transplants are normally, but was closed when we first got here.  Carol looks great and feels even better, however her body is having a few antibody issues with the new heart so she may be in the ICU a little longer then expected. I will inform more on this in a day or two as I know more. So hopefully in the next couple of days she will up to her feet, the chest tubes will come out and the anti-rejection drugs will calm those antibodies. All in all a very good day!

April 8, 2010 8:30 pm

Big day today as Carol has move to the step down unit.  The anti-body issue seems to be going well and she is off all of the heart support drugs.  They removed one of the chest tubes and the IV in her groin and she was up roaming the halls just 2 hours ago.  She is now able to eat solid foods and drink as she feels. She is looking better everyday.  I toured the new transplant house again today and got her a room all lined up for when she gets out of the hospital, it is very nice.  I'm asking that all cards just be sent there, as it is thought she could be in the house in as little as a week if all goes well.  More walks, better eating and adjustment of her anti-rejection drugs is what is expected to happen in the next couple of days. Her is her new adderess.

GIFT OF LIFE TRANSPLANT HOUSE

CAROL BROTT ROOM 137

724 SECOND ST. SW 

ROCHESTER, MN  55902

 

April 9, 2010 11:30 pm

Carol had another good as her new heart is working like a dream.  She has developed a real bad rash all over her body and samples were taken today to try to determine what exactly it is. They think just a reaction to the multiple anti-rejection drugs she has been given.  Three walks today and eating a little better.   Still two chest tubes remain until draining has stopped, maybe in a couple days they to will be removed.  They seem to think Carol may be discharged by this time next week, so I'm running home tonite to get some things for her as she prepares for her three month stay. 

April 11, 2010 10:00 pm

Returned from Clarion today, Carol is still doing great.  She is busy learning her new drugs and reviewing her many lifestyle changes.  She had another chest tube removed Saturday, now only one remains and she hopes it to will be removed soon. Walked four times today and a little further each time.  The rash has also gotten better over the last 24 hours and the results of the tests will be back tomorrow, nothing big is expected.  Weekends are always a little slower here so I'm thinking Monday will be busy.  Carol has had her new heart for a week now and already feels better then she has for over a year. Truely a much needed gift.

April 12, 2010 11:00 pm

Not many changes today, the chest tube remains in as it still is draining quite abit of fluid off the right lung.  Carol is getting to know her new drugs well and must before getting out of the hospital. The skin tests came back today and it is just a reaction to the meds and is clearing up nicely.  Carol and I went to the transplant support group meeting today, I think it was good for her to go there and tell he story. Three others waiting in the hospital for a heart, asked her alot of good questions and it felt good to try to help them with answers.  Carols's heart transplant was the first in nearly two and a half months here at Mayo, and there was three more since her.  I talked a few days ago about her anti-bodies and how they were hoping the rejection drugs would calm them down, well it worked for a couple days and now they are increasing daily so tomorrow they are thinking of starting something called Plasma Pharesis.  This is a cleaning of her plasma by removing it through a machine cleaning it and putting it back into her blood stream. This process will take two hours and need to happen 4-5 days to remove the needed anti-bodies. We will talk to the doctors more about it tomorrow morning. 

April 13, 2010 11:30 pm

Busy day today, x-rays this morning followed by another line put into the groin to do the plasma pharesis. Having this line in the groin is much easier then trying to place one elsewhere, however this means she is once again stuck to her bed until the line is removed.  They did the first run of the plasma pharesis this afternoon, seemed painless, but did have some minor side effects later.  They will repeat this for the next couple of days until the anti-bodies are reduced.  Looking as if her hospital stay may be lenghtened by a few days.  The machine used, removes her plasma and then replaces it with plasma for a donor.  Things for Carol may get real boring over the next few days as she wants to be up moving. She must prepare for set-backs as we've been told it probably want be the last.

April 15, 2010 9:00 pm

Sorry for not posting yesterday as I went home last night to do a few things and forgot to post.  Carol continues the plasma pharesis and will do so thru Saturday and by Monday they hope to know the results. Carol has had some affects from this, she is having multiple episodes of AFIB, something she knows well. So she is now being medicated to limit how often this happens, however hope is that this will stop a few days after they are done with the plasma exchange. Chest tube and the line in the groin are still in place, but hope to have both out on or before Saturday.  Plans are now to get out of the hospital next Wednesday, if all goes well. Really no big hurry as she will be here for a while anyway. She had a much better day today then yesterday.

April 16, 2010 11:00pm

Another good day today.  Carol is ready to be up moving around and will be tomorrow.  They removed her last chest tube today and will have her last treatment of plasma pharesis. The line in her groin will come out as soon as they are finished so by the afternoon she will be on her feet.  The AFIB seems to be under control with meds, so this made for a more enjoyable day. Carol is feeling a little better each of the last couple days. Busy day tomorrow so goodnight for now.

April 17, 2010 11:00 pm

Very busy and exciting day today!!  X-ray first thing this morning, as they do every morning, followed be her last treatment of plasma pharesis.  Then they removed her pacer wires, and started giving her a couple units of blood as her red cell count was getting low. While giving her the blood they removed the line from her groin, with this removed, no movement for two hours and then she can get up and moving. About an hour and a half into this time she blew her nose and felt a little pain in her groin.  She called in a nurse and when the nurse pulled back her blankets blood was pouring from her groin site.  And I mean coming out fast, help was called, doctors were called and they got it stopped fast. Carol lost her color, as I'm sure I did too, and she felt very light headed. She lost alot of blood fast, I would guess around two units.  They held pressure for several minutes, and used a sand bag for four hours to make sure it closed.  After getting the second unit of blood, Carol finally got up to her feet around 7:00 pm. She then received a med by IV form as the final step to the pharesis. By 10:15 she is finally tube, wire and IV free. Nothing but a heart monitor and a pick line in her arm. Good job Carol, almost out of here your doing great!!!! Two weeks today!!

April 18, 2010 12:00 pm

A day of much needed rest, walking and company.  Brady was up today to see his mom, and Carol was all about him being here. She went for several walks and just took it easy all day. We had some more educational info share with us by the nurses. Tomorrow a bunch of tests will be run to see how all is going, so more to share then.  I met a woman tonight at the transplant house who received a liver and a kidney. She is doing well and is looking forward to meeting Carol later this week.  She is very greatful to her donor and will always share something special with Carol, the Gift of Life from the same donor.

April 19, 2010 9:30 pm

No rest for Carol today, x-ray, echo, ultrasound, biopsy of her heart and many blood tests. CT scan of her lungs tomorrow and then meet with our heart transplant team. If all goes well she will get out of the hospital tomorrow afternoon or Wednesday morning.  I'm looking forward to getting her to the transplant house and getting her new routine underway. Won't know the results of the tests until Wednesday.  Any mail can be sent to the address at the top of this page. Thanks again for all your support!!

April 20, 2010 11:00 pm

Didn't make it out today, but hope to tomorrow. Test results all came back today and all seem to be in check, Doctors seem happy.  Spent most of the day relaxing and walking up and down the hall. Met with the transplant team today and discussed what will need to happen when we leave the house. Will feel good to have her in the same room as me tomorrow night.

April 22, 2010 11:45 am

I didn't get to post last night, I as was getting Carol all tucked in for the night.  She got out of the hospital last night at about 9:30 PM. We were both excited to be alone and sleep in the same room again. We talked and were up until around 12:00 then off to bed. She had a great day yesterday, capped by getting out.

April 23, 2010 3:30 pm

Carol is taking a nap as I write a quick note to let you all know that things are moving along smooth. She had her first check-up this morning, and nothing else until Monday. She will have check-ups every Monday, Wednesday and Friday. Our friends Amanda and Tim are bringing Sylvia and Brady up tonight around 6:00 for the weekend.  I plan to return to Clarion on Sunday with Brady, as Sylvia stays up here with Carol for a week or two.  Many friends are planning on coming up to stay in the weeks to come so I can be at home tending to buissness and Carol is ready to make the most of her stay here in Rochester.  Don't really want to leave her but need to make sure Brady and all is well back home.  She will be fine, I'm sure, just have been through so much together that I hate to miss out on anything. Big news, Carol and I became aunt and uncle again today.  No not Dwanye, my little sister Marcie and her husband Ryan and thier daughter added a boy to thier family this morning at 8:51. So happy for them!!

April 27, 2010 10:30 pm

All continues to be fine in Rochester.  I'm in Clarion now and have been since Sunday, Carol's mom is up with her for a couple weeks and Brady and I will visit on the weekends.  She plans on writing on here some herslef but has been very busy since I left, so I thought I better let you all know that she is doing great. She will very busy with check-ups the next two weeks and things should slow down from there as they get her drug levels under control. I talk to her everyday a couple times and she sounds good and feels like a routine is begining to form. Be sure to continue to check the site as Im sure she will be writing soon!!

May 5, 2010 7:30 am

Carol continues to stay very busy in Rochester.  Doctor visits almost everyday.  Everything seems to be going as good as hoped, the doctors are very happy with her progress.  No major setbacks thus far, just small bumps that are all part of the journey. She will start rehab next week, as hospital visits become less needed, only a couple times a week.  Her mom has been up with her the last couple of weeks as I'm home, back to work and taking care of Brady. Other friends will be staying with her in the next couple of weeks.  The hope is that Carol will be up to writing on here very soon, to keep you all informed.  Sorry for being slow on the updates as I have big shoes to fill here at home, being dad, mom, and keeping on top of my work and all of what Carol does for our family.  Can't wait till she gets home!! :) Miss ya more then ever!!!

May 9, 2010 12:30 pm (Carol)

Happy Mother's Day to all of the moms out there!!!  I feel truly blessed this year as being a mom to Brady and a wife to Johnny.  They have done so much for me and are here today to spend the weekend with me to make it even more special.  I am finally on the website, as John said I have been so busy with appts up here.  It is more than I realized.  Everything is going pretty good.  The Drs. are continually adjusting my medication as time goes on and the many blood draws that I have. This is normal and will continue to so while I am in Rochester.  I have a biopsy scheduled once a week.   My mom is going home today.  She has been up here for 2 weeks and has done great.  Amanda Carpenter (A Friend From Clarion) comes today to take her place for a week.  I have other friends also that are coming for a week or so.  If anyone in the future would like to come up to stay, please let me know.  Thanks  I am meeting a lot of people here at the transplant house, which is nice.  Everyone shares their stories with each other.  The transplant house is very nice, as well as are the rooms.  Thank you to everyone who has written on the website and have read John's notes.  I will continue to write.  Thanks to John for keeping everyone updated on our status.  Have a great day!!

May 10, 2010 (Carol)

Today I had my first cardiac rehab therapy session.  It went well and lasted an hour.  I had to do a 6 minute walk to measure my endurance.  I am happy to report that I passed.  Last week I had to do a test which required me to stand on one foot and balance.  They told me to try to hold it for 20 seconds.  I thought that would be a snap..........  Wrong...... flunked.  I lasted 7 seconds.  I asked to try again holding on to the table.  Can you believe they wouldn't!  Amanda Carpenter is here and doing great.  Her cooking is way better than mine, but that is no shock to anyone that knows me.  Tommorrow is biopsy day, which means an early start and lots of needle poking - and hopefully lots of happy medicine.  :-)

May 12, 2010 (Carol)

Hello everyone!  Yesterday I had a biopsy on my heart.  I have one done once a week to test to see if my body is rejecting the new heart.  The scale is 0 (no rejection) 1R (very mild rejection) 2R (mild rejection, adjust medicines) 3R (a lot rejection, definitely change meds and more echos) 4R (Severe rejection, new game plan needed).  I received the report today, and I was 1R.  Yeah - this is my 3rd biopsy and they have all been 1R.  So I am very thankful.  I also met with the transplant team, which I do several times a week.  I only have one line accessible for them to do the biopsy, which is in my left groin, which is still healing from the popped vessal.  They have to be very careful when doing this.  They normally go through the neck, but you know me, always the medical nightmare and a different game plan for me.  My neck is plugged with scar tissues from so many surgeries.

Today I had my last IV infusion - the second step of the plasma.  It was my fourth one, and I am very glad to be done with that.  One procedure off my list.  Tommorrow I have the day off, no appointments.  I am excited for noone poking me with some kind of needle.  I am doing well with the exception of being very, very sore.  I truly think they should give me some kind of pill that would just CURE that! :-)

May 13, 2010 (Carol)

Today I enjoyed my day off from appointments.  Tommorrow, Friday, back to appointments again.  I would like to thank everyone for the cards and phone calls that I have received.  It has made my days brighter.  I also appreciate everyone that reads or has written on my website. 

Tommorrow is John's birthday.  He will turn 38 years old.  So if anyone sees him, give him a big kiss from me - and yourself, of course!!

May 14, 2010 (Carol)

~~~~  Happy Birthday - John ~~~~  Big Kisses to you today on your birthday - Love, Carol ~~~~

May 15, 2010 (Carol)

Yesterday I was at the Clinic having my routine blood draw, chest xray, EKG, and transplant consult.  All went well.  I even got to stop taking 2 of my medicines.  So now I am only down to taking 298 pills!!! HA just kidding - although it seems like it.  

Enjoy your weekend.  It is bright and sunny today. 

May 18, 2010 (Carol)

Happy Taco Tuesday!  On Sunday, Shelly, Max, and Ben Powers visited me.  We had a very nice time.  Amanda went home that day, and my friend, Shari Garber from Perry, took her place babysitting me!!!  :-)  Today I had my usual appointments all day.  The very good news is that my lungs are almost cleared up and my kidneys are fantastic.  That was such a relief to hear knowing that before I almost needed a kidney transplant too!  My last appointment of the day was cardiac rehab.  I did my balance test again, and I PASSED.  I also got a "star" on my activity log that I need to keep each day.  I passed her test by remembering to bring it in.  Thank God I did that, I don't need another red check mark behind my name.

Exciting news on the homefront ---- Johnny got a new job and started TODAY!  I know you are all shocked.  He is now working for the DOT in Clarion.  He was up against 63 applicants.  He is very excited and has worked really hard for it.   GOOD JOB JOHN -- I am very proud of you!!!!!!!!!!!

May 20, 2010 (Carol)

Hello Everyone!  I would like you to know that when I post sometimes, the internet does NOT respond for some reason here.  This has happened to me three times.  So that is the reason for some days being missed.  I have everything typed out and then a no go...... it is the poops.

Yesterday was a beautiful day here.  Today it rained and misted all day.  John, Brady, and my mom are coming up tonight.  Today I was at the clinic for all of the usual tests.  My kidneys are fantastic, which is a great relief to me since I almost needed a kidney transplant before.  My lungs were good, but today they found an air pocket, so did two chest xrays.  I will find out the results next week.

My friend, Shari, went home today, and my mom is going to be with me the next couple of weeks.  I have a friend named Sierra here with me now until John gets here.  She is a nurse at Mayo Clinic that I am friends with. 

Have a great weekend!!

May 22, 2010 (Carol)

John, Brady, and Mom came up this weekend.  Mom is my caregiver for the next 2 weeks.  I think she was happy to come back up.  She even brought me a present.  I stayed with John and Brady in the hotel for the first time, which was great.  It felt good to get out and do something normal.  Brady, as you know, is not allowed to stay at the transplant house with me.  There is only one room that he is allowed in.  That is the poops, but I understand the "germ" concept. 

We went to a couple of parks and watched Brady play.  We also went to a movie, Shrek.  If I go anywhere it has to be at "off times", so I don't come in contact with so many people.  So we went to the matinee.  A patient at St. Mary's that I knew was at the movie also on a day pass.  He had just received an LVAD and had to have 2 nurses accompany him, because he wasn't doing very well.  We talked with him and his family, and he wanted a few tips on how I coped with the device.  I didn't lie to him and told him it was hard, but the LVAD saved my life.  I was at the hospital visiting after one of my appts (I know - imagine me visiting) and the nurse that was in the ICU with me asked if I would talk to him because he was very depressed.  So that is how I had met him.  Hopefully I helped him in some way, because I know what he is going through.  I think you just have to dig deep and really show what you are made of -- of course I already know what I am made of -- P and Vinegar!!

May 27, 2010 (Carol)

Tuesday was an eventful and exhausting day.  It started out by Mom and I going to my normal appointments and then I ended up in the ER at St. Marys (Mayo) Hospital.  When I was going to my first appt, I was experiencing double vision.  Mom said I was walking way to the right of people trying to not bump into them, as I was seeing twice as many people than there actually were.  I do not remember getting on the elevator or walking to the appt and checking in.  By the time we got there, they called Code One.  They took me by ambulance.  The next thing I knew I woke up in the ER. 

The doctor said that I suffered a TIA - a Mini Stroke.  Well after hearing that I thought I was having a full blown stroke.  Of course, I argued and said I Did Not!!!  I told them that I was just tired or too medicated from the drugs they are giving me.  You know how I try to be the doctor.  The crazy thing is that I do not even remember them putting an IV in my arm!!  I hate IVs.  You think I would be used to them.  (Just ask Sue Moss)

They did a CT scan and several other tests - which I passed all of them.  Yesterday was more tests because of this incident.  I had a MRI and a TEE (scope down my throat).  How much fun do you think that was?  I asked the dr and the nurses in there if anyone wanted to go first -- noone offered and had never had one.

On Friday, I have more tests and my normal tests and should have some more answers to why this has happened.  So just one more hurdle to jump -- and I am not even out for track!! 

May 28, 2010 (Carol)

Today I found out the results from the tests that I have done this week.  The bad news is that I did have a mini stroke.  The good news is that there was NO damage done to my new heart.  There also were no clots around my heart.  My MRI indicated that I did indeed have a brain, and no damage to that also.  I asked the doctor if this could happen again.  He couldn't tell me for sure, but hopefully not.  My transplant team thinks the stroke occurred due to all of the stress that my body has been through in the last seven months, in addition to the many machines that were in my body and now removed.

I do want to thank my Mom for "telling on me" that something was wrong with me and I needed medical attention immediately.  She saved me from a full blown stroke - so Thank You Mama Mia. 

Happy Memorial Weekend Everyone!!

May 31, 2010 (Carol)

John and Brady came up this weekend again.  Brady brought Triston Carpenter along.  It was nice to see him again.  They both attended their junior high dance (6th grade) Friday night with their girlfriends.  I am missing out on all of the action of his life.  I can't believe how much he changes each time I get to see him. 

Tommorrow is full of appointments.  Have a great week.

June 1, 2010 (Carol)

Happy June!!  I just got back to the transplant house from a day of appts starting at 7 am.  I had my last appts regarding the stroke.  All tests definitely proved that there was no damage.  According to my bloodwork they adjusted my medicines again, which is a perpetual activity.  The doctor that I saw today, very good looking by the way, had me do a series of tests, including watching me walk.  SO I made sure I had a nice little swing going on.............

June 5, 2010 (Carol)

Good Morning - Yesterday involved a day of appts including Cardiac Therapy, where I left part of my backside from walking so much.  All of my blood levels were fantastic except for one, which is always changing.  It is one of the anti rejection medications.  So that meant extra blood draws yesterday, the day before and on Monday.  My arm is like a pin cushion.  This medication is the poops, because it makes you shake among other bad side effects.  Now, once again, I have to increase the dosage.  My room is starting to look like a pharmacy!!  :-)

I am having company today - John and Brady are coming, also my aunt and cousin from Minnesota. 

AND just so you know, I am trying very hard not to come home with the Minnesota accent that I hear on a daily basis.  One of the guys I hang with has a very, very strong accent.  Another guy that hangs with mom and I is from South Dakota - with a strong accent also.  Both of those guys have wives that are being treated for stem cell and not doing well at all.  Us four eat together here at the transplant house, and they are always interested in my "new" caregivers, starting with Amanda Carpenter!!  :-)  Men!! 

June 9, 2010 (Carol)

Hello - On Saturday, my aunt Ethel and cousin Barb came to visit me, which was great.  John, Brady, and Mason Carpenter also came on Saturday.  My mom left on Sunday and Lynette Smith is here with me this week.  She is getting the great experience of life at the House and appts.  She is doing great!  On Monday I had a blood draw and cardiac therapy, then I was called to come in and do another blood draw immediately.  My INR showed - 24 - which is unheard of.  As many of you know, it is supposed to be between 2-3..... of course, only to me.  So long story short, the lab made an error, and I did not have to be wrapped in bubble wrap. 

Yesterday, I had a Biopsy, an Angiogram, and an Ivis.  I was at the hospital from 7:00 am until 5:30 pm The bad news is my proceedures started 4 HOURS after my original start time and lasted all day, so I couldn't even make the rest of my appts in another building.  They had a water main break, and the water was coming in on the electrical box......I made sure I wasn't having my appt in that room!!!  Can you imagine after everything I have been through and then get electricuted!

The GREAT news is that I am a ZERO -- now who wants to be a zero..... I do when it comes to the biopsies.  That was my result yesterday for the rejection of the heart.  I have been a 1R from my last three, now I am a 0 - with no rejection.  Made My Whole Day Worth It!  Hopefully I will continue at that number.  Also, my angio and ivis came back A-Ok.  An Ivis is a test I have never had before.  I learned yesterday that with a transplanted heart you do not have nerve endings for your heart. So they do this test to check it out.  All three tests were through my groin in two different spots - same leg.  One is in the main artery and one in the main vein, so today and the next three days, I have to take it easy, and I get to walk funny!

June 10, 2010 (Carol)

Good Morning - I went to the clinic for a blood draw today to check a particular level that has been very low.  They will call me later with instructions on increasing my medicine. 

Lynette is getting used to the routine around here and is doing very well.  

John is coming tommorrow to relieve her, and my friend, Margaret from DSM, is coming this weekend to relieve John.  Brady is staying in Clarion for the Festival in the Park, which will be really fun.  I am sad that I am going to miss it.  This will be the first time since I have moved to Clarion where I will miss it.  So hello to Clarion and to the Ambassadors!!!

June 11, 2010 (Carol)

Hello BRADY BROTT -- My sweet boy - Have a great day at Festival in the Park tommorrow.  I love you with all of my new heart!!!!!!

June 14, 2010 (Carol)

Today I had my appts at the clinic.  My blood work showed that all of my levels were great except for one, which is an antirejection medicine, so it has been increased once again.  The good news is that the doctor told me today that I am making excellent progress.  The bad news is that on Friday night, I noticed something protruding from my chest.  The doctor confirmed my thoughts today by telling me it is the wire inside of me poking out.....what??  So there are two options -- hopefully it will readjust itself and stop hurting or they will have to open up my chest and fix it.  The second one does not sound good to me.  I am saying an extra prayer tonight.

Lynette went home on Friday and John came to stay with me.  Lynette also gave blood for the first time while she was here, and she didn't even cry.  I was very proud of her.  John also gave blood while he was here too.  Thank you both and everyone else who takes the time to do this unselfish act of kindness.  I really appreciate it, as I had to have so many units of blood.

Margaret Meyer, my friend from DSM, is with me this week.

Have a great day!

June 16, 2010 (Carol)

Happy Birthday Triston Carpenter!!  Enjoy turning 12 years old today!  When I get home, I will give you birthday kisses. 

Yesterday, Margaret gave blood.  I was hoping they would let me watch -- but NO.  I thought it would be fun watching someone else be poked with a needle for once.  I do not have any appointments today!  I will be at the clinic tommorrow, however.  Have a spectacular day!

Hi to Johnny and Brady -- Love you both very much!!!!

June 19, 2010 (Carol)

On Thursday I had my usual blood draw and it showed that one of my meds was too high.  It was so high that my doctors had never ever seen anyone with a level that high!  This does sound familiar doesn't it??  So on Friday, I had to go back to have it drawn again - and low and behold it was a lab error.  I was again the only one at Mayo Clinic that day with a bad reading.  It is almost comical....almost.  My level is right on target now.  I will have this rechecked on Wednesday.  Next week I will be meeting with the surgeon to examine the protruding wire in my chest.

I would like to express my concern and well wishes to Clarion.  John told me about the excessive amounts of rain that they received and so many people had gotten water in their basement.  I know how frustrating that can be.  Good Luck Clarion.

June 22, 2010 (Carol)

Margaret left on Sunday, and my friend, Linda Dickerson, from DSM is now here with me at the transplant house.  She is getting familar with everything and my appointments.

Today I had an appointment with my transplant coordinator for 2 1/2 hours going over life after leaving Rochester.  It was very informative.  She told me about things I can do and things I cannot do for the rest of my life.  Yikes -- but well worth it.  I have a new heart, and I am very grateful for that.  I cannot express enough how fortunate I feel that I have received this gift of life and will be forever grateful to the donor and the amazing family.  I am sure they are still missing their loved one deeply, and I can only hope they know I will always take the best care of myself that I can.  I am truly appreciative today and everyday!!

June 24, 2010 (Carol)

Happy Thursday!  First of all, I would like to say Hello to Clarion and how sorry I am that you have gotten so much rain that the town is flooded.  What a mess.  John and my mom have been keeping me informed.  We both received water in our basements also.  This makes the fourth time for us.  Shelly Powers sent me a picture of the baseball diamond - I couldn't believe it.  I was excited to go swimming when I get home.  I didn't realize I wouldn't have to actually go to the Pool, I could just swim right outside the door.  GOOD LUCK everyone -- Keep Strong

I had a long day of appts yesterday with the last being with my surgeon.  Dr. Joyce examined my chest where the wire is protruding.  I got to see it on my chest xray also.  I couldn't believe how much wire I have inside of me.  The bottom line is I need to wait at least 2 more months to let it heal before he goes back in to repair it.  If i can't live with the pain, he will then go in earlier and fix it.  One of the reasons it is like that is because I do not have a lot of extra fat in that area to cover it up. 

My prograf level is also low once again, so more medicine as been added.  Basically, I am a walking pharmacy!  :-)

I probably shouldn't say this outloud, but the weather here is gorgeous today, bright and sunny.  I thought about Linda and I going waterskiing................just kidding - only because I can't be in a lake.

Have a fantastid day!

June 29, 2010 (Carol)

On Saturday, my friend, Linda went home.  We had a really nice time together.  She has learned a lot here like everyone else that lives the experience.  Amanda Carpenter brought Brady, Triston, and my mom up for the day.  We had a wonderful time.  We let the boys lead, and we followed.  My mom is now staying my last week with me.  Hopefully I will get to leave on Saturday.  My last appointments of the week are on Friday for my final assessments.  I had appointments yesterday and scheduled on Wednesday also of this week.  By Friday, I should know for sure.  Yesterday I did my cardiac rehab tests, which I passed!!  I walked as fast as I could (with no running allowed) to prove that I was ready to go.  It would be nice to go home on 4th of July weekend to celebrate my new independence!!! 

The drs are still trying to adjust my prograf level.  I am so hoping that I can go down on that medication.  It has very, very bad side effects, which I am already noticing.

I talked with Brady and John last night, and Brady told me all about his baseball game.  He was the pitcher and struck several people out.  Good Job Brady!  Hopefully I can see at least one of his games when I get home, if they are going to reschedule some make-up games.

Have a great week!

June 30, 2010 (Carol)

Today I was at the clinic doing cardiac rehab and a food safety class.  This class involved going over the restrictions of foods that I will have to adhere to the rest of my life.  I had certain limitations on what I could or could not eat for the first three months, which I have made it to now.  It is a small price to pay for having a new start on life.  It is just another life adjustment which I can do.  Tommorrow I have the day off, and on Friday I have four appointments scheduled. 

I would like to thank everyone once again for reading and writing on my website.  I truly appreciate it.  Thank you to Amy and Marla for creating this for John, Brady, and I.  It has been a fantastic way to communicate with everyone everywhere.  We are truly blessed with amazing family and friends who have helped us so much along the way.

Also a huge thank you again to everyone who was involved in my benefit in Clarion.  We live in an awesome community with so much love and compassion!  I am still in amazement.  I know that I have received the biggest gift of all when I received the heart.  Sometimes it doesn't seem real to know that this has happened to me.  I thank the donor, the donor's family, St. Mary's, Mayo Clinic, WMC, my family, my friends, and God for getting me to this point, so I can live longer.  I think I may just have a purpose on this earth.

July 1, 2010 (Carol)

Happy July!!  I hope everyone has a super sensational day!!

July 2, 2010 (Carol)

Today I had three appointments at Mayo.  The last appointment was a consult with my cardiac doctor. I have surpassed his expectations in my rehab performance testing.  It showed that I tested between normal and above average for a woman my age, especially for all of the trauma and a heart transplant that I have had done.  He released me today, and my transplant team has given me the green light to come home!!!

Clarion - here I come.  John and Brady - get ready - the mama is coming home!!

My next appointment scheduled here is July 26.

I would like to say an extra thank you to my friends that came to stay with me in Rochester.  I so appreciate it.

Amanda Carpenter, Lynette Smith, Shari Garber, Margaret Meyer, Linda Dickerson, and MY MOM!!!             I could not have done this without you!!!  Thank you for being my caregiver and friend.  I hope that all of you went home with a great experience, I know that I will be.

John and Brady -- thank you my sweet family for being by my side this whole time with your love and support.  You both mean the world to me.  I am so happy that I will now have the strength to enjoy every minute with both of you.

Happy 4th of July !!!!!!!!!!!!!

July 7, 2010 (Carol)

Hello Everyone -- I am home in Clarion!!  I did get home on Saturday at 3:00.  I had the nicest reception waiting for me on my street with my family and friends waiting there holding a welcome home Carol sign.  It was the coolest thing ever.  Brady was in the middle and John was on the end with big smiles.  It was wonderful.  The kids worked very hard on the sign.  Lynette and Kaylee Smith brought me home from Rochester.  That was cooked up between them and John without me knowing the real reason for it.  I thought John was still working on the basement from the flooding, which he was very busy with, but also busy with getting me a new car - which was sitting in the driveway with a car cover and balloons on it when I got there.  It is a 2010 Black Dodge Charger.  He had bought a wrecked one that had just been purchased and in a crash with a 165 miles on it.  Now it is mine.  So I am very lucky to have a new heart, a new car, and home to my precious family!!  Life Is Good......

July 8, 2010 (Carol)

On Tuesday, I went to the swimming pool.  It was great seeing everyone there, and they had a signed sheet from the staff welcoming me back to the pool.  How nice of them!  Something to be grateful for is I do not have to worry about having my LVAD and can actually go IN the pool, instead of sitting in a chair and watching; trying to keep my controller and batteries dry.  I enjoyed every minute watching Brady and his friends swim.  I also noticed that Brady kept a watchful eye on me, "just" to make sure I was still there.  That made my new heart melt.  I have a lot of catching up to do with my child, and I plan on making the most of every day with him. 

July 11, 2010 (Carol)

Yesterday was a dream come true for me.  I actually went in the pool and swam around with Brady for a short while.  He was happy, and I was happy.  Before the transplant, I wasn't sure if it would ever happen again.  To top it off, we laid in the sun side by side quietly together for about ten minutes - we didn't have to say anything at that moment.....we both just knew.....this is a miracle and we are going to enjoy it.

July 13, 2010 (Carol)

Yesterday I went to the hospital in Clarion and had my blood drawn for my antirejection levels, etc.  I am in charge of sending the prograf blood level in the mail to Mayo.  I should get the results in a couple of days.  Hopefully I can reduce the level of this medication, which my body would be happy with.  It has terrible side effects. 

I also got to see a lot of my friends, which was very, very nice.  It was great to be back.

Yesterday marked my 100th day of my heart transplant!!!

Happy Taco Tuesday.

July 15, 2010 (Carol)

I would like to say a big hello to all of my friends at the Transplant House in Rochester!!!  Also, a hello to my friends that have left the house and have returned home.  I miss you, and I am so grateful we got to know each other and have formed unforgettable bonds.  It was such an incredible experience that I will cherish always. 

When Lynette Smith was staying with me, she came up with a really cool idea and presented it to me when she left.  She had all of my friends at the transplant house "sign" a Christmas ornament for me to keep always.  Thank You Lynette!! 

July 16, 2010 (Carol)

Yesterday I went to the clinic for a checkup and got the results from my blood work -- all good. 

Dr. Ahrendsen listened to my new heart, and it sounded strong and "normal".  I think he liked my old heart, because it sounded different each time and fun to listen to.  Mayo called today and my prograf level is in a good range also.  Next blood draw is on Monday.

Some very sad news:  I received a call last night from my friend, Ron, from the transplant house.  His wife, whom had a stem cell transplant, passed away yesterday.  It has been a long road for both of them.  Ron ate dinner a lot with me and my caregivers at the transplant house.  Amanda Carpenter and Lynette Smith also became friends with him.  Ron -- you have my deepest sympathies.....

July 19, 2010 (Carol)

On Saturday -- Happy Birthday To My Brother, Dwayne!!!  48 and looking great - I love you.  Today a big Happy Birthday to Dr. Jeff Sturdivant, my friend and orthodontist from DSM.  He supplied the wine and a free set of braces at my benefit.  He also is 48 today!!  I hope all of your birthday wishes come true for both of you!!

I am off to the clinic for a blood draw.  Have a terrific Monday! 

July 22, 2010 (Carol)

This weekend we are off to Rochester for my appts on Monday.  I am scheduled all day for tests and consultations including a biopsy.  Hopefully the biopsy comes back a 0, meaning no rejection.  We have an appt scheduled for Brady to have an echo and a consultation with a cardiologist also while we are at Mayo.  Since there is such a strong family history, he needs to be checked once again. 

Have a great day!

July 27, 2010 (Carol)

We just got back from Mayo Clinic today.  On Monday, I had a blood draw, chest xray, ekg, biopsy, transplant coordinator consult, and dr. consult.  Big day and Big News -- My biopsy was a "0", which means no rejection!!  I did have some weird antibody thing going on, so another Echo was required today, but it was fine; so they did not have to keep me.  They gave me a little scare yesterday by indicating if the echo showed something more relating to the antibody, then I would have to be put in the hospital and start with the plasma pherises again!!  So I lucked out.  AND good news for Brady.  His echo was great, and the doctor did not see any signs that he has what I have.  What this also means is that he will have to have an echo each year to make sure something doesn't occur along the way.  But for now, he has an innocent heart murmmur.  He is thrilled and so are we.  His football season will be underway soon enough and he is excited for that and to be able to play!! 

My next visit to Mayo will be in about 4 weeks, where they will do a repeat of everything I had done this time, plus a visit with Dr. Joyce to check my protruding wires.  I will have weekly blood draws at WMC.

Have a great day!  I know we will.

July 29, 2010 (Carol)

My brother, Dwayne, came to visit us.  He will be staying for a few days!  We are very excited to see him once again.  I can't remember the last time that I have seen him that I have not been in a coma or in a hospital, so this is great.

Also good news -- I picked up Soul, my cat, at the vet yesterday!  He has been there ever since I had gotten home - 3 weeks and 2 days.  He had major ear infection in both ears.  I cannot be around any infection, so he had to stay there until he was completely infection free.  He is much better and looks great.  I am worried sick because I think my poor baby lost a pound or two....for those of you who don't know my cat -- his weight is 21 pounds....  :-) sooo he does have a little to go on.

As for me, my groin area is getting much better from Monday when I had the biopsy done, just another scar.  I can play dot to dot all over my body, I don't even need paper.

Have an awesome day!

July 31, 2010 (Carol)

When I was in Rochester this past week, I visited the Transplant House.  It was great seeing all of the staff and a few of my remaining friends there.  A big hello to them today!!  My next trip back to Mayo is August 26.  I will be at WMC on Mondays from now on for blood draws.

Last day of July today - Happy August tomorrow!!

August 3, 2010 (Carol)

Today marks 4 months since I received my new heart!!  I have been home 1 month today also.  It doesn't even seem possible.  Again, I would like to thank everyone who has been so supportive of me!  I am truly blessed with an awesome family, great friends, and a wonderful community to live in.  Thank you to my church, First Lutheran, and all of the other churches who have said so many prayers.  A big thank you to my caregivers - John, Mom, Amanda, Shari, Lynette, Margaret, and Linda!!!!  I could not have done it without each and every one of you!!! 

I am still amazed at the fantastic benefit that Clarion had for me.  Thank you to all of you that helped make it such a success.  Thanks to Eric Rector for the great idea and everyone that helped on the committee.  Thank you to everyone that donated items and their time.  The quilts were so nice.  Thank you to Amy Simonin and Marla Mashek for getting the website, Bradysbunch, started so we could keep in contact with everyone.  Thank you for reading and writing on the website!! 

August 9, 2010 (Carol)

Today I was at the hospital for a blood draw.  I will know the results later in the week.  Last week my labs were great, except for a few antirejection medicines were increased and another one will decrease in 2 weeks.  It was nice seeing so many people today at WMC.

I now can eat fresh fruits and vegetables as long as they are thoroughly washed.  This includes even washing bananas, oranges, watermellons, etc. before eating them.  The reasoning behind this is to eliminate all bacteria from entering my body, which would could be harmful to me.  I cannot eat anything that has been grown IN the ground, such as a potatoe.  I can eat the insides, but not the skin.  I cannot touch dirt ever again, so no mud fights for me.  Also I will not be able to plant flowers or garden, which I didn't do anyway. 

Happy Monday!! 

August 13, 2010 (Carol)

I got all of my blood results from Mayo and WMC.  Everything was fantastic.  As of right now, all of my medicines will stay the same and I go to Mayo in 2 weeks.

I received an email from the Blood Donor Center from Mayo about being selected for their 2011 Calendar.  They think I have a very unique story and would like to have John and I share it.  We will also have our picture hanging in the facility.  They are going to take our picture at the Gift of Life Transplant House in Rochester when I am there for my appts at the end of the month.  We have also been asked to speak at their Annual Appreciation Luncheon in October for all of the executives and businesses.  They would like me to speak as a receipeint of blood and John as a donor.  We each will talk about ten minutes, which seems like a lot, but I do have a long story!!  We feel very honored to be asked and be a part of this.  NOW what to wear, what to wear.........

August 17, 2010 (Carol)

I would like to say "Hi" to Donna Suhr -- my previous roommate from about 24 years ago.  I read what you wrote this morning, thank you.  It was great hearing from you.  I can only imagine what you thought when you found out - crazy.  Time sure changes, doesn't it, Donna?!  Sasha is in heaven, you have four children, and I've got a wonderful person's heart beating in my chest.  Long gone are the days living in the apartment on Watrous in DSM, but the memories have always stayed with me.  For example, your wedding, one of the funnest weddings I have ever been in!  That was a night to remember, and I know if Kim Gymer is reading this, she would want me to "thank her" once again for saving my life that night.  Once in a while, you shouldn't go swimming after dark.  :-)

August 23, 2010 (Carol)

On Thursday I got the chance to meet one of the nurses who helped change my life forever.  John, Brady, and I visited Iowa Heart in DSM.  I haven't been back there since my hospital stay in October when I had Open Heart Surgery.  This nurse played a key role in saving my life.  It was awesome to meet and talk with her.  I also got to visit a lot of the nurses and Dr. Hoyt in the clinic.  They were happy to see that I was still alive and received a new heart!!  I have been a patient there for 25 years. I would like to thank them for all of the years of great care.  I did let them know that now I am under the care of Mayo for the rest of eternity with my transplant.

Another great thing that happened was on Friday in Minneapolis at the Mall Of America.  We took Brady there to shop for school clothes and play at the indoor amusement park.  We had just gotten there, and I noticed a banner that said Mayo Clinic.  We walked up to it, and the first lady we spoke with has an office RIGHT BEDSIDE Dr. Joyce, my surgeon who did my transplant.  So she is very familiar with him, and was going to tell him that she met me.  Sometimes I am in the right place at the right time. 

August 24, 2010 (Carol)

Today Brady started back to school.  He is in the 7th grade.  We moved to Clarion when he started Kindergarten.  Hopefully he should have a great start knowing that I am out of the hospital and able to take and pick him up from school now.  I basically missed 6th grade for him, which was the start of middle school and all of the fun dances, etc.  Hopefully he will get settled in and have a great year!!  Maybe I should bake something for him when he is done with school today................... :-)

August 26, 2010 (Carol)

Good Morning - Today John and I are off to Mayo for my appointments and another biopsy which is scheduled for tommorrow.  Our picture is being taken today at the Gift of Life at 3:30 for the 2011 Calendar and the wall hanging in the Blood Donor Facility with Mayo. I received 70 units of blood, 36 units of fresh frozen plazma, 12 units of platelets, and 5 units of cryoprecipitate, which makes a total of 123 units.  They let me know that is a huge volume of blood to receive, and I am very grateful to all of those who have given blood, including John, who has started to give blood since the day I needed it and has continued to do so.  We are excited for this opportunity, and I have been practicing my smile every chance I get!!!  Have an inspiring day...

August 29, 2010 (Carol)

John and I had our picture taken on Thursday at the Gift Of Life Transplant House for the 2011 Calendar.  We thought they would snap a few pictures and that would be it.  They actually took about 60 pictures of us, just to use one picture!!  John and I decided modeling is a tough job.  We thought it was easy to keep a smile until half way into it.  We had to rest our faces, but it was well worth it.  I got to see some of my friends at the house and visit with them.

John and I went to the Blood Donor center prior to the pictures and donated blood.  He has done this everytime that he has come to Rochester when it was time.  You can donate blood every 56 days. Go Johnny!!  This was the start of being asked to do the calendar.

I had my appointments on Friday.  The doctor said I physically looked good and seemed like I was doing well.  My skin looked better and healthier than last time.  I had my biopsy also which requires an IV, which they tried 5 times before they got it in!!  They had 3 nurses trying it, which included 2 professionals for IVs.  I have tried to have a strict talk with my veins, but they do not want to listen. The biopsy showed a 1R, which means mild rejection.  I was hoping for another 0 like the last two times.  So my treatment plan is to increase two of my antirejection medicines and go back to Mayo in two weeks for an echo.  I will go to WMC for a blood draw on Thursday to check my levels.  Speaking of WMC, Steve's party was fun Saturday night, as it is every year.  It was awesome to see everyone there!  Again, thank you WMC for all of your support.

September 3, 2010 (Carol)

It is two months today that I have been home, and five months since my heart transplant.  I am grateful that I am here and celebrating a holiday weekend with my family.  Too many holidays came and went while I was in the hospital, so it makes me appreciate them so much more. 

I went for a blood draw yesterday and received some results (good) and the rest I will receive from Mayo when they receive it in the mail.  I am scheduled to go to Mayo again on Thur and Fri of next week.  My mom is going with me this time, as John has been with me all of the last appts.  We are going to stay at the transplant house on Thursday night. 

Happy Labor Day Weekend!!